A Month In ...
We are a month into Strensiq for Segunda. We had heard other patient anecdotes regarding the medication. All positive with a few reporting some side effects. The most common is the site injection sores. Here is how it is going for us: The first four injections had terrible site injection pain. The site became red, swollen and very painful even to graze the spot. Segunda let us know if we accidentally touched it and told us to "never touch my owie ever ever again." But the next rotation of injections saw a markedly smaller reaction, and now there isn't one at all. We are 11 shots in. This means we are just shy of a month. In the beginning, she suffered acute anxiety over the shots and would begin hyperventilating and panicking the moment I headed towards her refrigerator. She would shriek for daddy to hold her hand. Now, while she isn't fond of them and she sometimes still cries, she is starting to accept them as routine. Now for the fun stuff. In less than a mo...